A future with Healthbased Identification

Transcriber: Rhonda Jacobs
Reviewer: Eunice Tan

The World Health Organization
has expanded the definition of health

from being merely physical to complete
physical, social and mental well-being.

Today, I want to stretch
those boundaries a little more

and discuss about three new
dimensions of health:

health as an identity,

health as a public responsibility
and health as a fundamental right.

As we move from the first to the third,

the audacity of ideas is going to increase

and we are going to enter realms
of higher, more provocative thought.

So let’s start with the first one:

health as an identity.

We do know that health
is part of our identity,

but can health be our identity?

Case in point: vaccination passports.

Your vaccination status identifies you

and qualifies you for movement
from one region to the other,

just like a normal passport.

Or just like a normal passport
has certain immutable data points,

like your permanent address,
your date of birth,

while there are other dynamic data points,

like your visa status
or your temporary address,

your vaccination passport can actually
have certain static elements,

like the vaccinations
you have had as a child,

and some dynamic elements,
like flu vaccines, COVID vaccines, etc.

So whenever we are using
health status to identify you,

health becomes your identity.

And this is not the first time in human
history that we are doing this.

During the Second World War,

German soldiers had blood groups
tattooed on their bodies.

This is still a common practice,

to have blood groups mentioned in dog tags
or other military apparel, like uniforms.

If you notice carefully,

your driving license also
has your blood group mentioned on it.

Now, why is it important?

In case of a road traffic accident,

information like this can save
precious time in the emergency room.

But does your doctor know
about your diabetic status

before pumping in glucose?

Does the emergency doctor
know about your HIV status

before asking his team to jump in
with normal levels of safety protocols?

All these are fragments
of your health identity

and are extremely vital
to determine the outcome

of the clinical services
that have been delivered.

Another very common example
is disability certificates.

We identify individuals with special needs

and provide them the services
that are required for their condition.

So there is ample evidence
for massive gains to society

from maintaining
a comprehensive health identity.

But then the question arises

of why haven’t we made it
mainstream till now?

So there are primarily two considerations.

The first one is, like I mentioned,

the health identity has a static part
and a dynamic part.

For the ID to be relevant,

each and every health event
needs to be codified

and updated on the health identity.

Now, think of how complex this is
for a country like India.

For every health event,
whether you’re going to the dentist,

you’re going to the OPD
or going for a flu shot,

each of these events occur
in a different setup -

it can be a public setup
or a private setup -

and your data is housed in each
of these different setups separately.

Reconciling all of that into one
universal, longitudinal health record

is the Holy Grail for healthcare data.

Seems impossible to be done,

but the good news is that in India,

we have already taken
the first step towards it.

In August 2019, the National
Digital Health Mission has been announced,

which envisions a complete digital
ecosystem for all healthcare transactions,

connected to one unique
health identity for every citizen.

This is a tectonic shift
in healthcare operations in India

and probably will open the floodgates
of opportunities for innovations

in the days to come.

Now, let’s try and understand
the implications for this

with two scenarios.

The first one:

A patient is wheeled
into the emergency room

from a road traffic accident
in an unconscious condition.

The ER doctor searches his belongings
and finds his health ID there.

He logs on to a central system

and uses his license number
to gain access to his emergency records,

figures out the blood group
of the patient,

that the patient is diabetic,

understands that the patient had epilepsy,

which very well might have been the cause
of the accident in the first place,

and that the patient has recovered
from COVID in the last 15 days.

All of these data points
are extremely crucial

and can make a huge difference
in the outcome of the clinical care

when it is known versus unknown.

Let’s look at another scenario
of buying health insurance.

Let’s say you and me, both of us
want to buy health insurance.

We are of the same gender,
similar age category,

but your lifestyle is much
more healthy than mine.

You sleep better, you have a better
work-life balance.

So the chances are

that your health insurance premium
will be much, much lower than mine.

And this would be actually calculated

by the insurer fetching your health ID
and figuring out a health credit rating,

which is very similar
to a financial credit rating,

which allows you access
to certain financial instruments

based on your financial health
and history of financial behavior.

Similarly, a health credit rating can
provide you much lower insurance premiums

based on your health behavior in the past
and your current health status.

Now that we understand
the benefits of having a health ID,

we also need to be cognizant of the fact
that information can be misused.

Whenever in human history

we have classified individuals
based on identities,

like visual identities of race and color,

non-visual identities
of language and religion,

we have seen that while people garner
a lot of support from within the category,

there is dissonance between categories
to the levels of ostracization,

which is why it is extremely important
that the health ID be protected

and be revealed only to people
on a need-to-know basis

with consent from the user.

This brings me the second consideration

of why it is challenging
to implement a health ID.

Let me start by giving an example.

How many of you would be comfortable
in sharing your school or your workplace

with people living with HIV?

Even if I tell you that the chance
of contracting the disease

is less than 0.00036 percent,

what you would hear
is “chance of contracting the disease.”

This is also largely because as humans,
while in theory we understand probability,

it does not always translate in action.

Whenever we are making decisions,

we might disproportionately
overestimate the hazards,

especially when it comes to health.

That is why it is extremely important
that in the health ID,

certain parts be mandated
to be revealed by policy,

while others have to be
guarded and protected,

only to be revealed to people
on a need-to-know basis

with consent from the user.

This idea has been taken very seriously

by the architects for the National
Digital Health Commission,

who have placed user consent at the core
of the design of the health ID.

As we move into a new world
of genetic information,

we also move towards the possibility
of creating the ultimate health ID.

The uniqueness of your DNA
when connected to the health ID

makes health an indisputable part
of your identity.

But with this, we also venture into
a world of much more difficult questions.

For example,

would you still choose to be a surgeon
if you had known that you have a gene

which has a high chance
of spinal muscular disease in the future?

Would you still live in the cities

if you had a gene which had
a propensity for lung cancer,

knowing that city air
is relatively poorer than countryside air?

Would you still marry
the person that you love,

knowing that the compatibility

of your genetic components
on the health ID

do not guarantee a healthy progeny?

Let’s take it a bit further.

Would you match your health identities
for genetic compatibility

before dating someone?

All of these questions
do not have a linear answer

and are quite complex by themselves.

But what they do have is give us a sense

of the comprehension of probability,
choice and identity for us as humans.

These are all fragmented parts
of your health identity,

and this information is there.

How you use it is up to you.

Which brings me to the second dimension:
health as a public responsibility.

In more general terms,

it basically means
that the health of the individual

is as much the responsibility
of the society

as the health of the society
is the responsibility of the individual.

A common example we have seen
during the pandemic

is self-isolation
on contracting the disease.

Many people who tested positive
self-isolated themselves

to protect the rest of the society
from contracting the disease.

Very soon we’ll have some identities,
like vaccination passports,

regulating mobility
in high population areas,

like airports, swimming pools, malls, etc.

Some of us already have seen this
with the Aarogya Setu app in India,

where the app was used to control mobility
into high population areas like malls.

Many countries in the world,
during the pandemic,

have controlled mobility based on not just
the health status of the individual

but also mobility data
on where that individual has been.

If they have been in areas
of high infection probability,

their cumulative health score
makes them at a risk for the society

and their mobility is managed accordingly.

For all these operations to happen,

the fundamental building block required
would be some version of a health ID.

And in the near future, the same health ID
can be used in further use cases

where we influence the health of society.

For example, should your smart car,
based on your health identity,

decide whether you should be able
to drive on roads or not

in case you are an epileptic?

Let’s say you are out on a hike.

Should Google Maps,
based on your health identity,

decide which route you should take
based on the condition of your arthritis?

Let’s make it a little more provocative.

Should vaccinations be made mandatory
as a social responsibility?

Again, these are questions which might not
have a linear answer today,

but what they do exemplify

is the influence of us as individuals
on the health of the society,

and the influence of society
on our health.

Increasingly, more and more cities
are including the health perspective

in urban planning.

How do we design cities
such that there are no food deserts

and every point in the city
has access to fresh food?

How do we design cities
so that each point in the city

has an access to an emergency
room in under 15 minutes?

During the pandemic, we have seen cities
respond to a healthcare situation,

and going ahead, there’ll be
a pandemic mode of operations for cities,

where schools, stadiums, high volume areas

will be pre-earmarked for makeshift
quarantine centers if the need be.

Police and firemen will already have
pandemic mode drills.

Public transport will have
a pandemic mode of operation,

respecting social distancing.

Schools might have
a pandemic mode of operations,

which is a hybrid of offline
and online interactions.

So the cities will start investing
in their healthcare more and more.

Just like good neighborhood schools
influence the real estate prices

for the areas around them,

a similar trend
we can expect for hospitals,

where access to healthcare
will be a factor

increasing real estate prices
in and around hospital areas.

We have already seen some cities investing
in healthcare much more than others.

For example, some municipal
corporations in India

had a global tender for vaccines
outside of the central ration of vaccines

which they would receive
from the government anyway.

This basically shows us
how richer municipalities

can actually invest more
in their healthcare

and ensure that they attract
the best citizens based on the same.

But this, again,
brings a question of equity.

If health is a public responsibility,

who is accountable for equity
between richer cities

and relatively poorer ones?

Which brings me to my third perspective:

health as a fundamental right.

In the recent past, how many of us
have actually felt helpless

when we did not have an ICU bed
when we needed one?

More than the first wave,
during the second wave,

almost everybody, in their first-
or second-degree connects,

know people who did not get access
to an oxygen bed or an ICU bed

when they needed it.

This begs us to think

that shouldn’t our lives be protected
not just by the police and the military

but also by access
to ICU-level care when we need it?

Right to health is not
an explicit fundamental right

within the Constitution of India.

It is nested within the Directive
Principles of State Policy.

Time and again, the Supreme Court has,
through various judgments,

made sure that the right to health
is implicit within the right to life.

But then again, it is not enforceable
in the court of law

since it is not an explicit
fundamental right.

There are primarily two schools
of thought regarding this.

One which says that health needs to be
made into a fundamental right

and be moved from the State List
to the Concurrent List

so that the accountability of healthcare
is with the state government

as well as the central government.

This helps especially
in pandemic situations,

where some decisions can only
be taken by the central government.

For example, opening and closing
of international borders,

international trade
for essential commodities, etc.

While the second school of thought
says that bringing the center in

will increase a layer of bureaucracy,

leading to longer response time
in terms of emergencies,

and states have done fairly well
in containing outbreaks in the past.

Case in point, Kerala during Nipah virus,
meningitis in UP and Bihar.

So both models have
their own pros and cons,

and there’s no consensus to go ahead
with any one particular way as of yet.

But what I would urge you to think

is that do you feel strongly enough
about your right to health

as much as you do
about your right to life?

Are you equally aggravated when you do not
have an ICU bed when you need one

as you are when somebody assaults you
and breaches your right to life?

If not, what would change
once you do start demanding

the same level of rigor for health
from yourself and your governments

as you do for protection of your life?

At this point, I would like
to bring it to a wrap

by reiterating the three perspectives:
health as an identity,

health as a public responsibility
and health as a fundamental right.

I would like to leave you with the thought
of what would a future look like

where health is an identity,
health is a public responsibility

and health is potentially
a fundamental right.

What would be the opportunities
and innovations in a future like that?

What would you create and contribute
in a future like that?

A future which actually began
more than a year ago.