A Scoliosis Story When do beginnings start

[Music]

a girl trying on a dress with her mom

seems like a pretty normal situation but

there’s something about that dress

it just didn’t fit right it didn’t look

right

so she wanted her mother to get it

tailored one time

two times three times it reached a point

where the t where the taylor s

asked to see the girl in person

insisting that the measurements just had

to be correct at this point

it’s not the dress mom it’s the girl she

was told

that there wasn’t anything wrong with

the dress but something wrong with her

that girl was me and after meeting with

four different doctors and

three months of failed chirotherapy i

was finally diagnosed with scoliosis

for those who don’t know scoliosis is a

spinal disorder

the spine is made up of multiple bones

called vertebrae that are connected by

elastic tissues called fibrocartilage

scoliosis is when your vertebrae form a

curved line in an

s or c shape instead of being straight

so these vertebrae are what hold you up

they hold up your entire spine they

allow you to bend

stretch balance and even walk small

curves usually don’t cause problems but

a curve that gets worse means worse for

the patient

very large curves can impair heart

functions lung functions and other major

organs

however i didn’t know that three years

ago three years ago i was simply shown

this my x-ray picture i was told i

needed to get

immediate surgery the surgeon that

diagnosed me at the time

thought it would be a good idea to tell

me all the things that could go wrong in

a spinal fusion surgery

which is not few let me tell you a

spinal fusion surgery

is one of the most major surgeries in

the medical industry

risk number one periblesia in other

words getting paralyzed in the lower

body and legs

risk number two excessive blood loss

which for an anemic person was not

reassuring

number three infection failure of the

spine to fuse

rods breaking screws dislodging and the

list goes on

and honestly he lost me at paralyzed all

i could think about was

you’ll never walk down the aisle you’ll

never walk up to get your diploma

never never never and in that moment i

took a glance at my mother

and it was just a glance i could have

imagined it but there’s not

my mother with tears in her eyes there

sat

the woman whom i thought was the

strongest in the world

with eyes filled to the brim

and that was when i decided to put up my

big girl facade

i took a deep breath i pretended to be

cool calm and collected

keywords being pretended i looked at the

doctor and i put a smile on my face and

i said

no worries i did my research i know i’m

fine

yes i did do my research but in that

research i had barely caught a glimpse

of what was yet to come

so when we went home that day my coping

mechanism

was to just drown myself in research and

i just kept reading and

reading and reading until it wasn’t

enough until i needed to hear

someone real talk about their real life

experience

so i resorted to youtube and i clicked

on a video of a girl

talking about what she went through bad

move on my end

i was not in a state to hear a girl

suffering of anorexia talk about her

failed surgery

i just i needed someone to tell me that

i was gonna be okay

and that was when i finally decided to

talk to my mom about it

i bawled my eyes out admit that i was

scared and that i didn’t want to do this

my mom worked her magic like moms do and

lended me her strength

but i was also told that i had to do

physiotherapy before surgery

and i did for about two to three months

but i was told i had to do physiotherapy

before surgery and i did for about

two to three months and then

came september 17 2017

surgery day september 21 i sat up for

the first time

and then i started walking and then i

went up the stairs

and then my favorite one i went back

home

and in order to completely recover i did

physiotherapy

three times a week and every day at home

for eight months and then winter break

came along and i got to

escape reality when we traveled for two

weeks

when we got back and i went to my

checkup

i found out that i was back to square

one

that in the span of just two weeks my

year-long hard work was gone that’s my

300th days of pain were

completely useless that i had to start

it all

all over again as well as

get a back brace a bulk of plastic

killing me on the planets seriously you

can barely breathe in that thing

that was when i had reached my lowest

lots of what’s the point

thoughts what’s the point in trying if i

continue to fail what’s the point

in bothering at all if i’m just never

gonna get better

so to move on from that dark point in my

life

to today where i love my experience i

love my scar i’ve joined

non-profit organizations dedicated to

supporting young patients

i’ve contributed in a scoliosis app

research dedicated to helping patients

throughout their journey

it’s a huge 180 and i was able to

achieve this

growth when i realized that beginnings

don’t start at the start of something

meaning a new beginning does not require

a new day or a new month or a new year

your new beginning can start whenever

you decide for it to start whenever you

get up and decide to make it happen

because at the end of the day

you’re always gonna have all this time

in your hands and it’s all completely

meaningless

unless you do something with it there is

no

right time it’s what you decide to do

with your time that makes it right

once i decided that this time i’m gonna

do it right but this time

i will get better that’s when i really

started to recover

when i learned that you must make your

beginnings not wait for them to start

[音乐]

一个女孩和她妈妈一起试穿一件衣服

似乎很正常,

但那件衣服有一些

东西不合身,看起来也不合适,

所以她想让她妈妈

剪一次

两次 三次它达到

了泰勒

要求亲自见女孩的程度,

坚持认为此时测量值

必须正确,

这不是衣服妈妈,而是她

被告知没有任何问题的女孩

穿着这件衣服,但她有问题,

那个女孩是我,在与

四位不同的医生会面和

三个月失败的脊椎治疗后,我

终于被诊断出患有脊柱侧弯,

因为那些不知道脊柱侧弯是一种

脊柱疾病

的人脊柱是由多个

称为椎骨的骨骼由

称为纤维软骨的弹性组织连接

它们支撑着你的整个脊椎 它们

允许你弯曲

伸展平衡,甚至走小

曲线通常不会造成问题,

但曲线变差意味着

患者更糟

非常大的曲线会损害心脏

功能 肺功能和其他主要

器官

但是我 不知道 三

年前 三年前 我只是看到了

这张我的 X 光照片 我被告知我

需要

立即进行手术 当时诊断出我的外科医生

认为告诉我所有这些是个好主意

脊柱融合手术

中可能出错的事情不少让我告诉你,

脊柱融合

手术是医疗行业最重要的手术

之一

两次失血过多

,对于贫血的人来说,这并不能

让人放心。

第三次感染

脊柱无法熔断,

螺钉断裂,螺丝脱落,这个

名单还在继续

,老实说,他 lo 让我瘫痪了

我所能想到的就是

你永远不会走过过道你永远

不会走上去拿你的文凭

永远永远永远不会在那一刻我

瞥了一眼我的母亲

,那只是我能看到的 已经

想象过了,但

没有我的母亲眼里含着泪水坐在

我认为是

世界上最强壮的女人

,眼睛充满了边缘

,那是当我决定竖起我的

大女孩门面时,

我深吸了一口气 我假装很

冷静收集

关键词假装我看着

医生我脸上挂着微笑

不用担心我做了我的研究我知道我

很好

是的我做了我的研究但在那项

研究中我 几乎没有看到

即将发生的事情,

所以当我们那天回家时,我的应对

机制

就是让自己沉浸在研究中,

我一直在阅读、

阅读和阅读

,直到我需要听到

一个真实的人为止还不够 说说他们的真实生活

经历 oi 求助于 youtube,我点击

了一个女孩的视频,

讲述了她在我身上经历了哪些糟糕的

举动

我会好起来的

,那是当我最终决定

和妈妈谈谈这件事时,

我大哭了起来,承认我很

害怕,我不想这样做,

我妈妈像妈妈一样施展魔法并

借给我 我她的力量,

但我也被告知我必须

在手术前进行物理治疗

,我做了大约两到三个月,

但我被告知我必须

在手术前进行物理治疗,我做了大约

两到三个月,然后

在 9 月 17 日 2017 年

9 月 21 日手术日 我

第一次坐起来

,然后我开始走路,然后我

上了楼梯

,然后我最喜欢的一个,我

回家了

,为了完全康复,我

每周做 3 次物理治疗,每天在

回家八个月 d 然后寒假

来了,

当我们旅行了两周时,我不得不逃避现实,

当我们回来的时候,我去

检查

我发现我

在两周的时间里回到了我

一年的时间里 艰苦的工作已经过去了,这是我

第 300 天的痛苦

完全没有用,我不得不重新开始

,并

得到一个背支架,大量的塑料

在行星上杀死了我,

你几乎无法呼吸

那是什么时候 我已经达到了我的最低

点有

什么意义的想法如果我

继续失败有什么

意义如果我永远

不会变得更好

那么打扰有什么意义所以从我生命中的那个黑暗点继续前进

到今天 我爱我的经历 我

爱我的伤疤 我加入了

致力于支持年轻患者的非营利组织

我为脊柱侧弯应用程序研究做出了贡献

成长 当我意识到开始

不是从某件事的开始开始

意味着新的开始

不需要新的一天或新的一个月或新的一年

你的新开始可以开始,

只要你决定无论何时起床就开始

,并且 决定实现它,

因为在一天结束时,

你总是会把所有这些时间

都掌握在手中,

除非你用它做点什么,否则这一切都是

毫无意义的

一旦我决定这一次我会

做对但这次

我会变得更好那是我真正

开始恢复的

时候当我知道你必须开始你的

开始而不是等待他们开始