The dementia village thats redefining elder care Yvonne van Amerongen
This is the Hogeweyk.
It’s a neighborhood in a small town
very near Amsterdam, in the Netherlands.
There are 27 houses
for six, seven people each.
There’s a small mall with a restaurant,
a pub, a supermarket, a club room.
There are streets, alleys,
there’s a theater.
It actually is a nursing home.
A nursing home for people
that live with an advanced dementia
and that need 24-7 care and support.
Dementia is a terrible disease,
and we still don’t have any cure for it.
It’s getting to be
a major problem in the world,
for the people, for the politicians,
for the world – it’s getting
to be a big problem.
We see that we have waiting lists
in the nursing homes.
Most people that come to the nursing homes
with dementia are women.
And that’s also because women
are used to taking care of people,
so they can manage to take care
of their husband with dementia,
but the other way around
is not so easy for the gentlemen.
Dementia is a disease
that affects the brain.
The brain is confused.
People don’t know anymore
what the time is,
what’s going on, who people are.
They’re very confused.
And because of that confusion,
they get to be anxious,
depressed, aggressive.
This is a traditional nursing home.
I worked there in 1992.
I was a care manager.
And we often spoke together about the fact
that what we were doing there
was not what we wanted for our parents,
for our friends, for ourselves.
And one day, we said,
“When we keep on saying this,
nothing is going to change.
We are in charge here.
We should do something about this,
so that we do want
to have our parents here.”
We talked about that,
and what we saw every day
was that the people
that lived in our nursing home
were confused about their environment,
because what they saw
was a hospital-like environment,
with doctors and nurses
and paramedics in uniform,
and they lived on a ward.
And they didn’t understand
why they lived there.
And they looked for the place to get away.
They looked and hoped to find
the door to go home again.
And we said what we are doing
in this situation
is offering these people
that already have a confused brain
some more confusion.
We were adding confusion to confusion.
And that was not what these people needed.
These people wanted to have a life,
and the help, our help,
to deal with that dementia.
These people wanted to live
in a normal house,
not in a ward.
They wanted to have a normal household,
where they would smell their dinner
on the stove in the kitchen.
Or be free to go to the kitchen
and grab something to eat or drink.
That’s what these people needed.
And that’s what we should
organize for them.
And we said we should
organize this like at home,
so they wouldn’t live with a group
of 15 or 20 or 30, like in a ward.
No, a small group of people,
six or seven, family-like.
Like living with friends.
And we should find a way to select people
based on their ideas about life
so that they did have
a good chance to become friends,
when they lived together.
And we interviewed
all the families of the residents
about “what is important for your father,”
“what’s important for your mother,”
“what is their life like,”
“what do they want.”
And we found seven groups,
and we call them lifestyle groups.
And for instance,
we found this formal lifestyle.
In this lifestyle,
people have a more formal way
of interacting with each other,
a distant way.
Their daily rhythm
starts later in the day,
ends later in the day.
Classical music is more heard
in this lifestyle group
than in other lifestyle groups.
And their menu,
well, is more French cuisine
than traditional Dutch.
(Laughter)
In contrary to the craftsman lifestyle.
That’s a very traditional lifestyle,
and they get up early
in the morning, go to bed early,
because they have worked hard
their whole life, mostly with their hands,
very often had a very small
family business, a small farm, a shop,
or like Mr. B, he was a farmhand.
And he told me that he would go
to his work every morning
with a paper bag with his lunch
and one cigar.
That one cigar was the only luxury
he could afford for himself.
And after lunch,
he would have that one cigar.
And until the day he died in the Hogeweyk,
he was in this little shed, every day,
after lunch, to smoke his cigar.
This is my mother.
She’s of the cultural lifestyle,
she’s been living
in the Hogeweyk six weeks now.
And that lifestyle is about traveling,
meeting other people, other cultures,
interest in arts and music.
There are more lifestyles.
But that’s what we talked about,
and that’s what we did.
But that’s not life in a house
with a group of people,
like-minded people, your own life,
your own household.
There’s more in life,
everybody wants fun in life
and a meaningful life.
We are social animals –
we need a social life.
And that’s what we started.
We want to go out of our house
and do some shopping,
and meet other people.
Or go to the pub,
have a beer with friends.
Or like Mr. W – he likes
to go out every day,
see if there are nice ladies around.
(Laughter)
And he’s very courteous to them,
and he hopes for smiles and he gets them.
And he dances with them in the pub.
It’s a feast every day.
There are people that would
rather go to the restaurant,
have a wine with friends,
or lunch or dinner with friends
and celebrate life.
And my mother,
she takes a walk in the park,
and sits on a bench in the sun,
hoping that a passerby will come
and sit next to her
and have a conversation about life
or about the ducks in the pond.
That social life is important.
It means that you’re part
of society, that you belong.
And that’s what we people need.
Even if you’re living
with advanced dementia.
This is what I see from my office window.
And one day, I saw a lady
coming from one side,
and the other lady from the other side,
and they met at the corner.
And I knew both ladies very well.
I often saw them walking around outside.
And now and then, I tried
to have a conversation with them,
but their conversation was …
rather hard to understand.
But I saw them meeting,
and I saw them talking,
and I saw them gesturing.
And they had fun together.
And then they said goodbye,
and each went their own way.
And that’s what you want in life,
meeting other people
and being part of society.
And that’s what I saw happening.
The Hogeweyk has become a place
where people with very advanced
dementia can live,
have freedom and safety,
because the professionals working there
and the volunteers working there
know how to deal with dementia.
And the professionals know
how to do their professional work
in a way that it fits in a natural way
in the life of our residents.
And that means that the management
has to provide everything
those people need to do their work.
It needs a management
that dares to do this.
To do things differently
than we always have done
in a traditional nursing home.
We see that it works.
We think this can be done everywhere,
because this is not for the rich.
We’ve been doing this with the same budget
as any traditional nursing home
has in our country.
We work only with the state budget.
(Applause)
Because it has to do
with thinking different,
and looking at the person in front of you
and looking at what
does this person need now.
And it’s about a smile,
it’s about thinking different,
it’s about how you act,
and that costs nothing.
And there’s something else:
it’s about making choices.
It’s about making choices
what you spend your money on.
I always say,
“Red curtains are
as expensive as gray ones.”
(Laughter)
It’s possible, everywhere.
Thank you.
(Applause)