Biobanking For A Healthier World

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[Applause]

hello everyone

it’s really terrific to be here today

and i hope you enjoyed this tedx event

as

much as i do now i don’t know about your

experience

but when i get to new meet get to meet

new people like in this event here or at

the dinner party

the conversation sooner or later turns

into each other’s jobs

right and then i get asked so what’s

your job about what are you doing

and then i i pause and i really have to

think how to best explain

what am i doing i certainly

love my job i’m feeling absolutely

privileged

being able to do what i’m doing and it’s

the most interesting

fascinating diverse interdisciplinary

meaningful

but yet challenging work i have ever

been dreaming about

i am a biobanker and we heard

there is quite often some

misunderstanding no i’m not a banker

i’m a biobanker and even so there might

be common concepts

the focus of biobanking is absolutely

different one

and luckily we have tedx because now i

can explain

in more detail what it really means and

what biobanking means to each one of you

us and the world all over and that’s

what i’d like to

showcase in the next few minutes to you

now let’s start thinking of

what really a biobank is the concept of

it

and think about what is the most

precious item

you think of i’m not talking about your

wife your husband children

family relatives no maybe it’s a watch

you inherited from your granddad

or it is jewelry you obtained as a gift

from a special person

you certainly want to keep that

previous item safe protected and you

also do want to know where it is at all

times just to be sure

it’s there right and that’s the concepts

that biobanks also also bring about so

they

safeguard very appreciate samples and

associated data they protect them they

preserve them

in addition to that they monitor these

samples and data

for their life cycle well what does it

mean

life cycle well the biobank doesn’t come

with all the samples right now and i

will explain a little bit further

down the road what samples can be in

data

but you have to obtain the data and the

samples first and then you need to

process them

in order to preserve the most natural

state of these samples

and after processing them you want to

conserve them at that stage

and therefore depending on the purpose

later on down the life cycle of the

sample

you conserve them either at 4 degrees

at -20 at minus 80 or below even minus

150

30 degrees and for that we have nowadays

and you can see it behind

me basically highly automated

high throughput systems and they not

only allow to easily put the samples

into this facility but they also allow

if they are sample requests

to take from different locations in this

facility

samples out bring them together and hand

them over to those ones who requested

and that’s the next very specific topic

of biobanks

we don’t collect samples or data for our

own

purpose for ourselves now we want to

enable others to work with it

to foster research and innovation and i

think this is a very specific

characteristics of biobankers we

actually bioshare us here biosharing

samples and data and they will enable

others to work on those

now this might be very simplistic

overview of biobanking

and it comes more specific and detailed

if you look at the requirements that we

need

to tackle the first of all is by

specimen science which means we really

need to understand to research ourselves

how to obtain a sample and preserve it

the best

there’s also quality management so we

need to define how best

standardize our processes and how to

ensure

the quality of a sample now and forever

basically and to have it comparable

across different biobanks there is also

the it infrastructure

so we need basically to monitor the

samples and data

across their lifecycle now and reliable

and continuously but we also need to

connect the biobanks across the world in

order to make

full potential of all what we have in

our biobanks

we also need equipment of course we need

to basically have the entire workflow

covered and sometimes you actually not

only need to

validate new equipment we might even

need to build new equipment

because we still are need of certain

things which are not there yet

of course we also need to tackle healthy

issues

this is a short abbreviation for ethics

legal and social issues

and this is basically where we need to

work in adherence to ethics and legal

issues

and regulations and we talk with our

stakeholders

and customers how this can be further

developed so we take

taking the time and discuss with

patients patient representatives

with industry partners with the public

with politicians

medical doctors and so on to be really

developing

how we can use make use of these samples

further

now you can see from all these kind of

requirements

that the work of a biobanker is highly

interdisciplinary

right we need to work together and this

is really interesting but also sometimes

challenging because all of us having a

different profession

be biologists medical doctors

veterinarians

ethicists lawyers physicists i.t

specialists we all speak different

languages so that’s a challenge right

there

how to basically make biobanks working

function and being successful

but it comes even more tricky if you

consider what kind

of main domains or types of biobanks are

actually out there

and this is highlighted behind me there

are hospital integrated biobanks

there are population-based biobanks then

we have also human biomonitoring

planned biobanks environment biobanks

domestic and wildlife biobanks and

museum biobanks

and i selected just a few examples of

few of them

to show you how important biobanks are

for all of us and to make even the world

healthier

so let’s start with healthcare

integrated biobanking and it’s all about

the patient

coming to the hospital with a specific

disease

and biobanks don’t care that much about

routine diagnostics on samples and data

and samples can be tissue or liquid

samples

so this is not what we care of but we

care about the research

in order that research can improve

precision medicine

and that’s why they are in need of

samples and data

and behind me it shows you basically to

you that for a long time there was a

real structural gap between

clinical care and the research side the

sample

somehow got into the research side

but we didn’t know anything about the

quality how they were obtained

and data were missing most of the time

so we know

today that many research projects in the

past

didn’t come up with meaningful

conclusion because

the samples were lacking quality and the

results cannot be applied in the

clinical site

so what what happened then is basically

we have closed this gap with centralized

quality certified biobanks and it’s a

learning circle where basically the

structural biobanks can

from patient um consenting

sample collection processing storage and

biomaterial requests basically give

high quality samples and data from the

clinical side

to the research side but this data also

go back to the clinicians to feed into

therapy guidance and this has been

obviously

very important now in the covet pandemic

where biobanks were helping on the

clinical side

actually making it a little bit easier

for the clinicians to collect

these valuable samples from covert

patients in order to foster

coming up with new diagnostic tests or

developing basically

vaccines but also of course we also

support

clinical trials or nuclear tumor boards

and i would like to

characterize a little bit what molecular

tumors are about

so if you have a cancer patient who has

failed

all guideline therapies this patient has

no hope really

whatsoever so it’s a life expectancy of

a few weeks

months maybe and there there are no

guideline therapies

so what the only thing you can do is

basically get

fresh samples prepare them in a high

quality way and for the purpose

for the newest technologies in research

and then this data

come back get into systems medicine and

then we

hopefully can give the molecular tumor

board and the patient the therapy

guidance

now we do this with biobanks because we

know best about the sample quality and

the purpose these samples are needed for

and there’s one case i want to show you

basically it was a female

patient with pancreatic cancer one of

the most devastating tumor diseases this

pencil

this cancer was basically quite advanced

this patient

was not operable on enter the life

expectancy of about three months

so we supported with the biobank

infrastructure getting the samples right

at the ore biopsy of this

tumor prepared the way that the

downstream analysis could use it to the

maximum

analyzing different regulation levels

and then giving the data back to systems

medicine and you can easily see

even you even so you’re not an expert

that in the center there’s one node and

that reflects one gene mutation which is

surrounded by

many many smaller dots which are other

genes which reflect

other signaling pathways so this one

gene mutation is the achilles heel of

that tumor for that particular patient

so we suggested

that this patient should get a low dose

routine chemotherapy

in order to prevent side effects and

then get an antibody therapy against

this one target

so this patient surprisingly lift then

not for three months

not for six months but for two years

and with quite a good life quality so

this is a success story

where biobanks can play very

instrumental role

and we of course need to learn from

these success stories even so

there are also other stories which are

more sad

but we need to learn together in this

interdisciplinary approach

now in contrast to health care

integrated biobanks we have

population-based biobanks and

they work with healthy individuals so

they invite from the population

healthy people to come to the biobank to

get basically analysis

from top to toe so it can be that you

analyze laboratory diagnostics routinely

you do chest x-ray or you do a scan of

the brain

and more and more then we facilitate

even genomics medicine so we do genome

analysis of the dna

and by that biobanks can support

research on population-based diseases

such as heart failure

or diabetes and with this genomics

medicine we can come up with even more

risk assessments for this

individual person to say well you have a

high risk to develop

later in life diabetes and you might

want to change the luck your lifestyle

in order to prevent

getting diabetes so this is another

example where biobanks can be really of

help and support

now the third example of related to

human health are human bi-monitoring

biobanks and they

try to tackle how the chemical pollution

of our environment is affecting our

health and we can obtain

chemical pollution through our food

through our

water by medications

by radiation by smoke

and any other toxins in our environment

and i think that these

human biomonitoring biobanks are still

underrepresented and this will be

a field of research where biobanks will

be much

more important in the near future of

course

toxins don’t only hurt us they also hurt

the plants themselves and in order to

prevent

the biodiversity of plants which can be

impacted by

global warming we hear it about it it

can be

by monocultures industrialization but

also toxins

there are biobanks of plants who try to

preserve this biodiversity of crops

by having field gene banks by having

and vitro gene banks or cryobanks

and you will be amazed to realize that

we have more than 400 botanical gardens

worldwide

who basically preserve crops and we have

more than 1

700 agricultural biobanks

who give basically preservation or

access to more than

7 million accessions of crops

this is really amazing but of course

there are also specific biobanks who

tackle not individual

like plants but they basically try to

support the entire environment research

and these are environmental biobanks

and they try to understand how pollution

impacting or

the climate change or the melting of the

polar ice is influencing our entire

ecosystem

or specific regions

now this brings me to the another topic

because melting of the polar

ice is actually impacting the habitant

of the polar bear and

wildlife biobanking is about preserving

also biodiversity of our

animals and especially those one were

endangered and here you see on the slide

behind me one of our pioneers

in wildlife biobanking biopreservation

who’s taking a blood sample

from a white rhinoceros in order to

facilitate genomics medicine or genomics

research and also

disease monitoring of this endangered

species

but furthermore wildlife biobanking

means also providing

siemens for breeding programs in

cooperation with seuss where we have

protected

areas for these breeding processes

and furthermore this picture i love

especially because it shows how we

engage with the public

and even educate our future generations

about the challenges we have and we try

to tackle today

so with this said i hope that i could

convince you that biobanking is

really highly interdisciplinary most

interesting challenging and rewarding at

once

but is also able to support our world

making it healthier i think it’s really

important to understand that biobanks

work across the world in networks

to make full use of all our collections

and i really would like to invite you

also to let’s make our lifestyles here

make new treatments possible but let’s

not forget

about that we have the responsibility to

protect

basically all biodiversity in our world

and and our planet itself

thank you very much for listening if

you’re interested reach out to me

afterwards

thank you

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[掌声]

大家

好,今天来到这里真是太棒了

,我希望你们和我现在一样喜欢这个 tedx 活动

我不知道你们的

经历,

但是当我有新的见面时去见面

新人喜欢在这里或晚宴上的这个活动

,谈话迟早会

变成彼此的

工作,然后我被问到

你的工作是什么,你在做什么

,然后我停下来,我真的必须

考虑如何做到最好 解释

我在做什么我当然

热爱我的工作我感到非常

荣幸

能够做我正在做的事情这是我一直梦想

的最有趣的、

迷人的、多元化的跨学科

有意义

但又具有挑战性的工作

我是一名生物银行家,我们 听说

经常有一些

误解不,我不是银行家,

我是生物银行家,即便如此,可能

会有一些共同的概念

,生物银行的重点是完全

不同的

,幸运的是我们有 tedx,因为现在我

可以解释了

n 更详细地了解它的真正含义以及

生物银行对你们每个

人以及全世界的意义,这

就是我想

在接下来的几分钟内向你们展示的内容

现在让我们开始思考

什么是真正的生物银行

它的概念

,想想你认为最珍贵的东西是什么

我不是在谈论你的

妻子你的丈夫孩子

家庭亲戚不,也许它是

你从祖父那里继承的手表,

或者它是你从一个特别的人那里获得的作为礼物的珠宝

您当然希望

保护以前的物品安全,并且您

也确实想随时知道它在哪里,

以确保

它在那里是正确的,这

也是生物库也带来的概念,因此

他们

保护非常珍贵的样本和

相关数据 他们保护它们他们

除了保护它们之外还保护它们他们很好地监控这些

样本和数据

的生命周期以及生命周期是什么

意思

生物库并没有

随所有样本钻机一起提供 ht 现在,

我将

进一步解释数据中可以包含哪些样本,

但是您必须先获取数据

和样本,然后您需要

处理它们

以保持这些样本的最自然

状态

,之后 处理它们,您想

在那个阶段保存它们

,因此

根据样品的生命周期以后的目的,

您可以将它们保存在 4 度

、-20 度、负 80 度或更低甚至负

150

度 30 度,为此我们有 如今

,您可以在我身后看到它

基本上是高度自动化的

高通量系统,它们

不仅可以轻松地将样品

放入该设施中,而且还允许

如果样品

请求从该设施的不同位置

取出样品,则可以将它们放在一起并 将

它们交给那些提出要求的人

,这是生物库的下一个非常具体的主题

我们不会为自己的目的收集样本或数据,

现在我们想要

使其他人能够与之合作

以促进研究和创新,我

认为这是生物银行家的一个非常具体的

特征,我们

实际上在这里生物共享我们生物共享

样本和数据,它们将使

其他人能够从事这些工作,

现在这可能是

对生物银行的非常简单的概述

如果您查看我们

需要解决的首先是通过

标本科学的要求,它会更加具体和详细,这意味着我们真的

需要了解自己研究

如何获取样品并

最好地保存它

还有质量管理所以 我们

需要定义如何最好地

标准化我们的流程,以及如何从

现在到永远确保样本的质量,

并使其

在不同的生物

样本库

之间具有可比性 可靠

且持续,但我们还需要

连接世界各地的生物库,

充分利用 我们生物库中所有的潜力

我们还需要设备 当然,我们

需要基本上涵盖整个工作流程

,有时您实际上

不仅需要

验证新设备,我们甚至可能

需要建造新设备,

因为我们仍然需要某些

当然,我们还需要解决健康

问题

这是道德

法律和社会问题的缩写

,这基本上是我们

需要遵守道德和法律

问题

和法规的地方,我们与

利益相关者交谈

和客户如何进一步

开发,因此我们

花时间与

患者患者代表

与行业合作伙伴与公众

与政治家

医生讨论等等,以真正

开发

我们如何使用这些样本,

现在您可以 从所有这些

要求中可以

看出,生物银行家的工作是高度

跨学科的,

我们需要工作 在一起,

这真的很有趣,但有时也很

有挑战性,因为我们所有人都有

不同的职业

是生物学家医生

兽医

伦理学家律师物理学家它

专家我们都说不同的

语言所以这是一个挑战

如何基本上使生物库发挥

作用并取得成功

但是 如果您

考虑实际存在什么样

的主要领域或类型的生物库,那就更加棘手

,这在我身后突出显示

有医院综合生物库

有基于人群的生物库然后

我们还有人类生物监测

计划生物库环境生物库

国内和 野生动物生物样本库和

博物馆生物

样本库,我只选择了其中的几个例子,

向您展示生物样本库对

我们所有人的重要性,甚至让世界

更健康,

所以让我们从医疗保健

综合生物样本库开始,这一切都是

关于患者

来到 患有特定

疾病的医院

生物

样本库不太关心样本和数据的常规诊断

,样本可以是组织或液体

样本,

所以这不是我们关心的,但我们

关心研究

,以便研究可以改进

精准医学

,这就是为什么它们是 需要

样本和数据

,在我身后,它基本上向

您表明,很长一段时间以来

临床护理和研究方面之间存在真正的结构性差距,

样本

以某种方式进入了研究方面,

但我们对此一无所知

质量它们是如何获得的,

而且大部分时间数据都丢失了,

所以我们

今天知道,过去的许多研究项目都

没有得出有意义的

结论,

因为样本缺乏质量,

结果不能应用于

临床现场,

所以什么 然后发生的事情基本上是

我们已经通过集中

质量认证的生物库缩小了这一差距,这是一个

学习圈,基本上

结构生物库可以

从 p 患者同意

样本采集处理存储和

生物材料请求基本上将

高质量的样本和数据从

临床方提供

给研究方,但这些数据

也回馈给临床医生以供

治疗指导,这在

现在显然非常重要 大流行

,生物库在

临床方面提供帮助

实际上

使临床医生更容易

从隐蔽患者那里收集这些有价值的样本

,以

促进提出新的诊断测试或

开发基本

疫苗,但当然我们也

支持

临床试验 或核肿瘤委员会

,我

想稍微描述一下分子

肿瘤是什么,

所以如果你有一个癌症患者

没有通过

所有的指导治疗,这个患者

真的没有希望,

所以它的预期

寿命可能只有几周

和几个月 没有

指导疗法,

所以你唯一能做的就是

基本上得到

新鲜的样本,以高质量的方式准备它们,

用于最新的研究技术

,然后这些

数据返回到系统医学中,

然后我们

希望现在可以为分子肿瘤

委员会和患者提供治疗

指导

这与生物库有关,因为

我们最了解样本质量和

需要这些样本的目的,

我想向您展示一个案例,

基本上是一名

患有胰腺癌的女性患者,这

是最具破坏性的肿瘤疾病之一,这支

铅笔

基本上是这种癌症 相当先进的

该患者

在进入

大约三个月的预期寿命时无法进行手术,

因此我们通过生物库基础设施提供支持,在

该肿瘤的矿石活检中正确获取样本

,为

下游分析可以最大限度地利用它

分析不同的法规做好准备 水平

,然后将数据返回给系统

医学,即使您前夜也可以轻松查看

所以你不是专家

,在中心有一个节点,

它反映了一个基因突变,

它被许多小点包围,这些小点是

反映

其他信号通路的其他基因,所以这个

基因突变是那个肿瘤的致命弱点

对于那个特定的病人,

所以我们

建议这个病人应该接受低剂量的

常规化疗

,以防止副作用,

然后接受针对这个目标的抗体治疗,

所以这个病人出人意料地解除

了三个月

而不是六个月,而是两个 多年

,生活质量相当好,所以

这是一个成功的故事

,生物样本库可以发挥非常

重要的作用

,我们当然需要从

这些成功故事中学习,即使

还有其他

更悲伤的故事,

但我们需要一起学习 这种

跨学科方法

现在与医疗保健

综合生物库相比,我们有

基于人群的生物库,

它们与健康个体合作 所以

他们从人群中邀请

健康的人来生物库,从头到脚

进行基本分析

,这样你就可以

定期分析实验室诊断,

你做胸部 X 光检查,或者你做

大脑扫描

等等 我们甚至促进了

基因组学医学,因此我们对 dna 进行基因组

分析,因此

生物库可以支持

对基于人群的疾病

(如心力衰竭

或糖尿病)的研究,并且通过这种基因组学

医学,我们可以为这个人提出更多的

风险评估,

以 说得好,你

以后患糖尿病的风险很高,你可能

想改变你的生活方式

防止患上糖尿病,所以这是另一个

例子,生物库现在可以真正

帮助和支持

第三个例子

人类健康是人类双向监测

生物库,它们

试图解决

我们环境的化学污染如何影响我们的

健康,我们可以获得

化学物质 通过我们的食物

通过我们的

水通过药物

通过烟雾

和我们环境中的任何其他毒素的辐射造成污染

,我认为这些

人类生物监测生物库的

代表性仍然不足,这将是

一个研究领域,在不久的将来,生物库

将变得

更加重要

当然,

毒素不仅会伤害我们,还会

伤害植物本身,为了

防止

植物的生物多样性

受到

全球变暖的影响,我们听说它

可能

是单一栽培工业化,

还有毒素

有植物的生物库 谁试图

通过拥有和体外基因库或冷冻库来建立田间基因库来保护这种作物的生物多样性

,你会惊讶地发现

我们在全球拥有 400 多个植物园

它们基本上保存了作物,我们拥有

1700 多个农业生物库

他们基本上保存或

获取超过

700 万种作物,

这真是太神奇了 g 但当然

也有一些特定的生物库不像植物那样

处理个体,

但他们基本上试图

支持整个环境研究

,这些是环境生物库

,他们试图了解污染如何

影响

或气候变化或

极地冰的融化 现在影响我们的整个

生态系统

或特定区域,

这将我带到另一个话题,

因为极地

冰的融化实际上正在影响

北极熊的居民,而

野生动物生物库

也是为了保护我们

动物的生物多样性,尤其是那些

濒临灭绝的动物 在我身后的幻灯片上看到

我们

在野生动物生物库生物保存方面的先驱之一,

他正在从白犀牛身上采集血液样本

,以

促进基因组学医学或基因组学

研究以及

对这种濒危物种的疾病监测,

但此外,野生动物生物库

还意味着

为繁殖提供西门子 与

合作的项目 苏斯,我们

为这些育种过程提供了保护区

,而且这张照片我特别喜欢,

因为它展示了我们如何

与公众互动

,甚至教育我们的后代

我们面临的挑战,我们

今天试图解决

这个问题,所以我希望 我可以

说服你,生物样本库确实是

高度跨学科的,最

有趣的挑战和回报,

但也能够支持我们的世界

,使其更健康我

认为了解生物样本库

在世界各地的网络中工作

以充分利用我们所有 收藏品

,我真的很想邀请

您让我们在这里的生活方式

使新的治疗成为可能,但我们

不要

忘记我们有责任

保护

我们世界和地球本身的所有生物多样性,

非常感谢您的聆听,如果

你有兴趣之后联系我

谢谢